PRISMS (Parents and Researchers Interested in Smith-Magenis Syndrome)
972-231-0035
Fax: 413-826-6539
Email: info@prisms.org
Web site: www.prisms.org
Area
United States and international countries
Fees
Yearly membership fee is $30 to join PRISMS and receive newsletters and other resources
Services
Provides support to families and professionals that have a person with Smith-Magenis in their lives and/or work with or treat these individuals. Supports individuals of all ages.
- Answers questions by phone/email
- Information and resources
- Sibshops or sibling support
- Listserv
- Newsletter
- Refers contact families that are in the same geographic region or have a child of the same age
- International conference for families and professionals