Protocol Number:


Study Name:
Cystic Fibrosis (CF) Foundation Registry

Age Group:
Adult

Background Information:
The goal of the CFF Registry is to develop and maintain a database of CF patients that collects and stores de-identified patient medical information and other related information. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF and guide quality improvement initiatives at care centers. Researchers also use the Patient Registry to study CF treatments and outcomes and to design CF clinical trials.

Principle Investigator: A. Whitney Brown, MD

See full details